Well you all know how it goes, it was easy to update at the hospital when the big kids were with Grandma and Jax was pretty out of it. Since being home, life is back to it's craziness!
Jaxen is doing SO well! He is getting into everything and keeping us on our toes. Giving Jaxen his medicines and cleaning his wounds takes A LOT of time. A made a chart to hang on the refrigerator - just to keep us all on track of when Jaxen gets his medicines. He takes 4 different types of medicines, with a total of 6 different doses - not counting the Tylenol that he can have every 4 hours. I am so glad that most of the medicines are about to run out. It will really help out when we aren't on a constant time constraint with medicine schedules.
We also have to clean and re wrap Jaxen's burns once a day. You can only imagine what kind of chore it is to have a 15-month old sit still long enough to wash, medicate, and wrap his arm and hand! His lip is easy to take care of, but he picks at it a lot because he can. So the key has been for us to keep the medicine on it - which keeps it moist and keeps it from scabbing over. It's looking better and better every day!
The one thing that I am concerned about is Jaxen's breathing. It's still quite labored at times. . . the medicine doesn't seem to be helping a whole lot. I'm going to check with the KU burn center, but I think I'm going to have to get him seen by a Respiratory Specialist. However, I'm not sure if I am suppose to go through the hospital or through Jaxen's pediatrician.
Jaxen has his first follow up appointment at the Outpatient Wound and Burn Clinic tomorrow at 9 am. I feel like it's a test on how well Mommy and Daddy took care of him this past week! I will let you know how tomorrow goes!!
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1 comments:
Hugs Heidi! I hope that everything looks good when you go in! I was going to come ask about your if you hadn't updated, so I'm glad to see your post this morning!
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