700am - Like I've said before Mr. Jaxen is a fighter. Daddy took the night shift and let me get some sleep, I was hurting pretty bad. Jaxen kept Dad on his toes all night. . . he's coughing up a lot of mucus. Which is a good thing, he's clearing his lungs. He freaks out a little with the suction straw, so for the most part he is being allowed to cough it all out himself. They have also fed him all night long through the feeding tube. . . which he hates. So needless to say, Jaxen and Daddy did not have a good night. Hopefully, this morning they will turn off his feeding tube and at least allow him to rest comfortably for a while. Nurses are in the process of changing over now, Daddy's going to try and get some sleep {at least until Kylie gets here to see if he'll eat} and Mommy is coming back on duty. I hope you are all having a fabulous morning.
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| Jaxen - Burn Unit ICU - Day 5 |
430pm - Wow, the day has gotten away from me! Jaxen has made some BIG advances today. This morning the Peds Doctor was in before her shift - bright and early! - to check on little man. Even though it was a rough night, she was so happy with his progress overnight. During the nurse shift change, our nurse from yesterday came to check on Jax and I questioned when the last time he had gotten a pain reliever. . . Noon yesterday!! My poor baby! We quickly put an order in for some Tylenol.
Kylie was here as promised to let Jaxen try some food. He did really well with the swallowing of juice but he was having troubles swallowing chunks. Kylie was thinking that the feeding tube was hindering his ability to swallow correctly because he is so small. After talking to the doctors about the feeding tube - they agreed to remove it and let him try to eat. Yay!!! However, before the tube was removed, Jaxen did throw up a lot of mucus and part of his foods.
After resting a while, Kylie came back and let Jaxen try again. He did wonderful!! He ate applesauce, apple juice, fruit, and graham crackers. Kylie game him the green light for food. . . Doctor's said he can start with a liquid diet today, whatever he wants tomorrow. {But since Jax is friends with all the ladies on the floor, he got some applesauce from his nurses. . . and technically, it's not on the liquid diet. Shhh!}
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| Here we are after the feeding tube was removed. A short time later the rest of those stickers and wires were removed also! |
Jaxen has had tons of visitors today - so many that I'm not sure I can remember them all! I know a nurse from the Outpatient Burn & Wound Center came up and talked to me about the physical therapy that Jaxen is going to have to have. We will have to stretch and massage the scars on his face so that they heal correctly and without scarring - and they will show us how and work with us to get it done. Jax will have multiple appointments with the department to make sure everything is perfect. A cool little fun fact - considering the circumstances, of course - Jaxen will get a little "Micheal Jackson" glove for his hand like Grandpa had! :-) After the wounds all heal closed, Jaxen will start having the medicines and creams to rub into his burns -- again, all that will come from the outpatient clinic downstairs once we are discharged -- for now we have to keep an ointment on the wounds until they heal closed.
A child psychologist came by to talk to us about the fears and behavioral issues that we might now experience with Jaxen. He was really nice and super helpful, even giving us advise on how to address somethings with Chloe and Jacob. I have his card and he welcomed communication even after we get discharged. A team came by to show Jerry and I how to change the dressing on Jaxen's wounds. Jerry was awesome at it! But had we not felt comfortable in changing the dressing, they were going to set up a at-home-nurse to help us out with the task. But since Jerry proved to them that he was a pro -- they will send us home with EVERYTHING we will need. . . right down to the scissors used to cut the old dressings off!
As you can see, these were just a few of the many visitors that we have had. There was a Social Worker that came by and helped us out with the paperwork we needed for work. A lady from Admittance finally came by for our signatures and insurance. . . since Jaxen arrived by himself - they didn't get anything from us. Also, we've heard there is a visit from a "Toy Lady" in our future. . . the possibilities seem endless! I am really impressed with this hospital {someone please remind me of this when the bill comes. . . lol}!
Jaxen has ate 2 meals so far today on the liquid diet. . . he's eating broth, jello, applesauce, and apple juice. Jerry and I have managed to sneak away while Jaxen
Jaxen also had an EKG test done on his heart. While he was sleeping this afternoon he was having some very irregular heartbeats. . . it would go from 113 to 88 to 97 to 114 back down to 85. So for precaution AND for mommy reassurance the test was done and we are still waiting for the results. But I imagine if it was bad they would be doing something about it.
Well it's taken me about 1/2 the day to write this because of all the visitors and hanging out with Jaxen. I'm sure there is a ton more I am forgetting and will remember later, but I am going to post this so you don't think we have fallen off the face of the earth!
1150pm - Jaxen was FINALLY able to get some sleep. . . it was only a 2-hour nap but it was much needed. Jerry had to be "Papa Bear" and practically demand that people stay out until he woke unless it was absolutely necessary. Which most things weren't, they held off on all his medicines and checkups until 1050pm when we opened his eyes on his own. I had to hang a blanket over the end of his crib so that Jaxen wouldn't wake up to EVERY single person who came to the door. . . the blanket also helped with his anxiety attacks. Once we told the nurses that he was awake and they could do what they had to do, Jaxen got a diaper change and got all his meds including some more Tylenol. Now we are back on "Let my Baby Sleep Mode". . . Jax has one more medicine to be administered but it goes into his IV and they can do that once he's asleep. Jerry walked downstairs to get us a drink {& midnight snacks}, we both got potty breaks, and Jaxen ate {more like scarfed} some more applesauce!!! :-)
Check back for more updates. . .
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